Battery Included...

Battery Included...

At the end of June I had a follow up Echo cardiogram, and the very next morning my cardiologist called me...(that's never a good sign) He told me that my Ejection Fraction (google it) was decreasing, this last Echo showed it to be between 30-30%, the previous Echo I had in April was 40%- Because of this, he suggested that I get a second opinion, and take a more aggressive approach to my treatment for the Congestive Heart Failure. His recommendation was to go to the Cleveland Clinic to meet with a doctor there. This past Monday was my appointment at the Clinic. Over the waiting time (between the echo in June and this appointment) I was feeling worse.

I am feeling tired, and short of breath and really emotional , and I am having a lot of PVC's.

Also over the time I was waiting for the trip to Cleveland, I was joking about feeling like "Dorothy waiting to go to OZ"- there are so many similarities! (Comparing the Doctors at the Clinic to the 'Great and Powerful Oz"..."If I only had a {good} heart" ,etc.) the most ironic thing about that comparison was the fact that when we pulled up to the Miller family Heart pavilion, it was a tall green tinted glass building! -My Oz! I felt like Dorothy felt , full of excitement to find my answer, and fear of what lies ahead, I entered the large green building...

On Monday, I met with three Doctors, Dr. Zimbwa a cardiologist, Dr. Hsich , the attending cardiologist, and Dr. Kanj, and electrophysiologist. I also had to go back on Tuesday for a cardiac MRI and I elected to meet with Cardiac Rehab nutritionist while I was up there that day for the MRI
The very short version of the results of the visit are:
1. I will have to have an ICD-Pacemaker placed in my body, on November 11.
2. MY meds were adjusted and added to , now I am on 9 medications a day.
3.I will be following a strict Heart Failure/Diabetic diet.

4.The Cardiac MRI showed more fluid around my heart-lungs than was revealed on the Echo, so one of the additional meds that was added is a second diuretic that, along with the dietary sodium reduction, they hope will pull the extra fluid away from my body...

Right now I am trying to process all of this, the emotion of the journey ahead of me, adjusting to the new meds, and feeling physically spent, and the financial reality of all this is becoming a bit overwhelming.

I am working hard on being thankful.
I am thankful for...

My support system of family and friends.
Doctors with knowledge, skills and access to technology.

That I have a job
That I have a plan of action, which has a very positive outlook of feeling better in time.

I know that there are many more things I can add to that list at this time, these are the most important and the things I am focusing on.

There is a line from a Mumford and Sons song that I keep focusing on that says "You are not alone in this, as brothers we will stand and we'll hold your hand."
As I turn 42 years old tomorrow, my hope is that this 42nd year of my life will be one of healing, hope, growth ,positivity and joy! I also hope that I can get back to the part of me that likes to share positivity and joy! I know I can get there again!

Seven Pills a Day Keeps the Doctor Away?!

For some reason, taking all the meds is getting to me...maybe because they are making me so tired, maybe because I have never taken anything but asthma meds, and vitamins on a regular basis, maybe because I feel worse than before I started taking them, or that I feel dependent on them...I guess I am. I have come to the realization that I will be on at least two of the meds (accounts for four pills/day) for the rest of my life, and the fact that they seem to make me feel worse rather than better, seems to be a looming reality. I think if I took these meds, and I felt great, I would look forward to taking them! When I went for the Echo last week I was told that the enlargement had not gone down at all, and nothing had changed. I was a bit disappointed in that, until I had encouragement from those around me, with words of wisdom and support. I am so blessed to be surrounded by loving people that each have one way or another to encourage. Some it is simply saying that they love me, for others it is "tough love", and for some it is taking a laundry basket up the steps, or offering to help with my daughters shower. Whatever it is, it is all valuable and is helping me cope with the DCM... So I will continue to take the meds, and follow the Dr.'s advice...eat healthy...( I have made significant changes in that area I will blog about in the future) I am not completely discouraged, I am really not. I just needed to write it down. Chel